Cancer Incidence in Peninsular Malaysia, 2003-2005 The Third Report of the National Cancer Registry, Malaysia

source: http://www.radiologymalaysia.org/Archive/NCR/NCR2003-2005Bk.pdf
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The.Malaysian.National.Cancer.Registry.(NCR).is.a.service.supported.by.Ministry.of.Health,.Malaysia.
(MOH).to.collect.information.about.cancer.incidence.in.Malaysia..This.information.is.vital.in.planning.
and.evaluation.of.cancer.services.by.the.governemental.agencies,.Non.Governemental.Organizations.
(NGO),.private.providers.and.the.industry..
.
In.November.2001,.the.Honorable.Minister.of.Health.Malaysia.directed.the.Clinical.Research.Centre.
(CRC).to.establish.a.National.Cancer.Registry.(NCR)..Following.this.directive,.the.NCR’s.Sponsor.
Group.was.formed..The.membership.comprised.of.Oncologist,.Pathologist,.Haematologist,.Paediatric.
Oncologist,.Head.of.the.Cancer.Research.Centre.in.the.Institute.of.Medical.Research,.Director.of.the.
Disease.Control.Division.and.the.Director.of.the.Medical.Development.Division...In.April.2002,.the.
NCR.obtained.approval.from.the.Director.General.of.Health.to.setup.its.operations.and.was.
subsequently.awarded.a.Medical.Research.Grant.grant.in.June.2002.by.the.Deputy.Director.General.
of.Health.(Research.&.Tech.Support)...
.
Administratively,.the.NCR.began.as.one.of.the.seven.clinical.registries.under.the.umbrella.of.the.
Clinical.Research.Centre,.Ministry.of.Health..In.2005,.as.the.registry.‘matured’.the.administration.of.
the.registry.was.handed.over.to.the.Department.of.Radiotherapy.and.Oncology,.Hospital.Kuala.
Lumpur..In.response.to.the.call.by.the.Director.General.of.Health.for.a.single.Cancer.Registry.in.
Malaysia,.the.Division.of.Public.Health.(DPH).has.taken.over.the.management.of.the.NCR.from.2007.
onwards..This.is.timely.as.the.DPH.is.in.the.midst.of.expanding.its.cancer.registration.system.at.a.
national.level..It.is.hoped.that.with.a.single.management.system,.the.regional.registries.alongwith.the.
national.registry.would.be.able.to.produce.national.data.more.effectively.and.efficiently..This.will.
provide.the.much.needed.impetus.for.further.development.of.cancer.programmes.and.initiatives...
.
.
The.objectives.of.National.Cancer.Registry.are.to:.
1..Determine.the.disease.burden.attributable.to.cancer.by.quantifying.the.magnitude.of.cancer.
.morbidity.and.mortality,.and.its.geographic.and.temporal.trends.in.Malaysia..
2..Identify.subgroups.in.the.population.at.high.risk.of.cancer.to.whom.cancer.prevention.effort.
.should.be.targeted..
3..Stimulate.and.facilitate.epidemiological.research.on.cancer.with.respect.to.cancer.etiology,.
.diagnosis.and.prognosis..
4..Evaluate.cancer.treatment,.control.and.prevention.programme..
.
The.NCR.received.data.voluntarily.on.cancer.incidence.mainly.from.individual.doctors.who.provided.
cancer.diagnostic.services.or.who.cared.for.cancer.patients..Information.on.cancer.incidence.was.
also.extracted.using.the.the.Ministry.of.Health’s.Hospital.Information.System..
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NATIONAL CANCER REGISTRY
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The.day.to.day.operations.of.the.NCR.can.be.categorized.as.two.essential.components:.
a.......................These.are.the.day.to.day.administration,.site.and.data.management.
.operations.of.a.Registry..It.entails.general.administration.of.the.registry,.initiating.and.maintaining.
.site.participation.in.the.registry,.data.acquisition,.data.storage,.data.processing.(data.transmittal,.
.review,.coding,.cleaning,.query,.reconciling,.transferring.and.archiving),.data.quality.assurance,.
.and.periodic.site.monitoring.and.retraining..
...
b..................................An.electronic.database.server.was.used.to.store.the.data.and.
.a.database.application.was.used.to.automate.most.of.the.work.processes.involved.in.data.
.management..The.database.management.system.required.routine.administration,.maintenance.
.and.continuing.development.and.enhancement.to.meet.the.dynamic.needs.of.this.registry..
..
........................
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Oncology,.Haematology.and.Pathology.services,.MOH.
Division.of.Disease.Control,.Public.Health.Department,.MOH.
Medical.Development.Division,.MOH.
Cancer.Research.Centre,.Institute.for.Medical.Research,.MOH.
Clinical.Research.Centre,.Hospital.Kuala.Lumpur,.MOH.
....................................
NATIONAL CANCER REGISTRY
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Malaysia.is.located.in.the.South.East.Asian.region.and.covers.an.area.of.329,.961.km2..It.shares.its.
borders.with.Singapore,.Thailand,.Indonesia.and.Brunei..The.South.China.Sea.separates.West.and.
East.Malaysia;.West.Malaysia.being.a.peninsular.region.of.the.Asian.Continent.whereas.East.
Malaysia.is.located.on.the.Island.of.Borneo..There.are.a.total.of.13.states.and.three.Federal.
Territories.as.follows:.
.
..Peninsular.Malaysia.
..Northern.Region:.Perlis,.Kedah,.Penang,.Perak..
..East.Coast.Region:.Kelantan,.Terengganu,.Pahang..
..Central.Region:.Selangor,.Federal.Territory.of.Kuala.Lumpur.and.Federal.Territory.of.
Putrajaya..
..Southern.Region:.Negeri.Sembilan,.Malacca,.Johor..
.
..East.Malaysia.
..Sarawak.
..Sabah.
..Federal.Territory.of.Labuan.
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Malaysia.enjoys.an.equatorial.climate..It.is.hot.and.humid.throughout.the.year.with.an.average.
temperature.of.27oC.and.an.annual.rainfall.that.exceeds.2000.mm..The.rainy.seasons.are.influenced.
by.the.monsoon.trade.winds..
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